Living with cerebral palsy in the Nordic countries

Project Department: Uni Research Rokkan Centre (group: Health and Welfare ) period: 01.07.17 - 01.07.21

About the project

In this project, an experienced and multidisciplinary network of researchers will utilize central national registers combined with national quality registers in Sweden, Norway, Denmark, Iceland, and Finland to investigate health, quality of life (QoL), socioeconomic status (SES), labor market outcomes, health care utilization, and mortality in children, adults, and parents of individuals with a diagnosis of cerebral palsy (CP).

Living with a disability does not need to be a negative experience. Nevertheless, moving through life for persons with disabilities is certainly a different experience. How persons with disabilities, and by extension their families, fare in important domains such as health, education, and employment depend on individual factors such as type and severity of disability. Yet, life does not occur in a vacuum and outcomes are greatly influenced by the interactions between individual and environmental factors such as family support, social-public health policies, interpretation and enforcement of laws, and societal attitudes. These macro-level factors do not only differ globally, but within the Nordic countries, and at times within individual countries.

Persons with disabilities are clearly worse off in developing countries but it has not been sufficiently studied how persons with complex disabilities fare in different aspects of life in Norden, and much stands to be learned by comparing and contrasting practices and outcomes in Norden.

Funding source: NordForsk
Contact party: Lund University, Project Manager Gunnar Häggdal

cp: 2019-12-04 11:16:35